English
Rehabilitation and co-operation: the representatives of ten countries in Hungary
2011. április 17. vasárnap, 09:08
An international professional conference was held in Pécs, Hungary in March for civilians with the participation of MS organizations from ten CEE countries. The event organized by the Foundation for Hungarian Patients With Multiple Sclerosis (Hungarian abbreviation MSMBA) aimed at serving as an opportunity for exchange of experience concerning the patient organizations’ work exercised for the MS patients of the region, sharing the plans and results achieved in the treatment and rehabilitation of MS patients, as well as presenting and discussing good practices.
Bővebben: Rehabilitation and co-operation: the representatives of ten countries in Hungary
Final program of the upcoming international MS conference
We take great pleasure in welcoming our colleagues to the upcoming (24-26 March 2011) Past and Future international MS conference in Hungary! The aim of our conference is to set a frame for further cooperation in MS care and rehabilitation and to create an opportunity for discussion with special interest to the CEE countries.
It is a great honor to be able to host an international event at Pécs, Hungary.
Bővebben: Final program of the upcoming international MS conference
Invitation to the international MS conference in Hungary
The Foundation for Hungarian Patients with Multiple Sclerosis is preparing an international meeting at Pécs in strong cooperation with the University of Pécs. Besides the Past and Future conference there will be an other symposium at Pécs for professionals, neuroimmunologists interested in antibody-mediated nervous system diseases (MS and Neuroimmunology Days, Pecs, March 25-26, 2011).
Bővebben: Invitation to the international MS conference in Hungary
Partnership and cooperation
In the course of a decade, the number of various non-governmental s increased to a great extent. This on the one hand is welcome news, if the tendency brings about the strengthening of self- movements, however, on the other hand it incorporates the danger that tender and sponsorship supports available would be broken up into small pieces. There is competition also among civilians: it is enough to just think about the campaign regarding the offering of the 1% of our income tax, but there is a similar contest in place also for tender resources and the goodwill of patrons.
Why is there a need for patient organizations?
Ideally, no patient organizations would be needed. People would be well-informed about different illnesses and diseases, and they would be aware of their options, when the doctor makes them face unexpected diagnoses. No waiting would be needed at the surgeries, and there would be no crowded wards in the hospitals, and the physicians and nurses treating exposed patients would never be overwrought. Patients would always receive the most modern medicinal treatments available as well as supplemental treatments, and the possibility of rehabilitation would be available in every region, which a good number of people would actually utilize.
Unique MS Centre in Nyíregyháza
MSMBA has established and operated the one single health institution in Hungary today that specifically serves the rehabilitation of MS patients: this institute is the Nyíregyháza SM Centre. With the support of the Nyíregyháza local government, the Foundation purchased an estate in the town for this purpose in 2002. Having overcome many hindrances of bureaucracy and financing, the Centre was opened in 2006: it provided for the treatment of 16 patients that year, and from 2007, it can accommodate 25 patients. The demand for treatment can be shown by the fact that patients living 40-50 kilometres from the institute are driven to the rehabilitation centre every day. Two-thirds of the patients are physically disabled at a medium or severe level.
Organized constant contact with medics
The interests of physicians and patients are identical in many fields: both groups find it important that patients should receive as modern a treatment as possible, that doctors and nurses should work under the most optimal conditions at hospital and clinic departments, for this is the key for patients to get the best treatment possible – within the limits of the supply system. The national foundation as well as the local associations found great partners in the department head physicians and institute leaders, who often dedicated their own free time to participating in various programs of the MS organizations, and to being available for the patients at such events.
Rehabilitation for everyday life to be easier
In a significant proportion of the cases, patients need to live with MS for decades, therefore the quality of their life is very important. Active treatments and modern therapies are crucial in controlling the disease for the longest period possible, but the importance of rehabilitation improving everyday life between treatments should also be emphasized. One of the most significant deficiencies in Hungary is inherent in (the lack of) rehabilitation options; that is why one of the key objectives of the Foundation ever since its establishment has been to seek and find as many such options as possible for the patients; this commitment was also specified in the Deed of Foundation.
Undertaking a social role today and tomorrow
What would be necessary for everyone not to think immediately of a person stumbling in the street and trying to grip the wall of a building, that he lost balance due to being drunk? What is needed for a person wanting to use the elevator for disabled people in a building or on a bus not to be looked at disapprovingly? What would be needed for a person with a chronic disease hoping for positive discrimination in the labour market due to his partial incapacity for work not to be viewed as a burden, but a person worth being given a chance by others?
Representation of Interests and Provision of Support
In general, patients who are members of a well-operating fellowship do not feel so lost. These fellowships provide support that cannot be replaced by anything else in the battle with the disease: as the members are all in the same world, they never have to be ashamed in front of one another, and there is no other community where they could so openly discuss the problems they have to face every day, and which they will not even share with their family members.
Bővebben: Representation of Interests and Provision of Support
1. oldal / 2