Why is there a need for patient organizations?

2011. február 10. | MSMBA

Ideally, no patient organizations would be needed. People would be well-informed about different illnesses and diseases, and they would be aware of their options, when the doctor makes them face unexpected diagnoses. No waiting would be needed at the surgeries, and there would be no crowded wards in the hospitals, and the physicians and nurses [&hellip

Ideally, no patient organizations would be needed. People would be well-informed about different illnesses and diseases, and they would be aware of their options, when the doctor makes them face unexpected diagnoses. No waiting would be needed at the surgeries, and there would be no crowded wards in the hospitals, and the physicians and nurses treating exposed patients would never be overwrought. Patients would always receive the most modern medicinal treatments available as well as supplemental treatments, and the possibility of rehabilitation would be available in every region, which a good number of people would actually utilize.

Members of the patients’ families would have stable jobs with good salaries and they would dispose of sufficient savings, enabling them not to be significantly affected by a family member’s loss of salary; furthermore, after such family members’ recovery process, if their condition allows, they could return to work as employers would be happy to employ them despite their partial incapacity to work, and would provide to them jobs suitable for their condition. Solidarity in society would be so strong that not even patient fellowships would be needed, and ill people could remain in their own circles of friends and colleagues as before, because nobody would treat them with prejudice or as misfits only…

Reading through the above listed conditions, we cannot conclude anything else but that, unfortunately, patient organizations still have a lot to fight for in the decades to follow.

Having gotten through the battles of the first decade and being shielded by some reverses, and – fortunately more frequently – by successes, the Foundation for Hungarian Patients with Multiple Sclerosis keeps up the work they started in 1999, in order to fight for achieving a more bearable life for the people suffering from this incurable disease that is not at all their fault. Nevertheless, it is worth stopping for a moment, and reviewing the achievements so far, and commemorating those who made these achievements possible. This is the aim of this leaflet, which may not provide a full overview, but which does display all the sceneries where we work together with our co-workers, volunteers, patrons and supporters, helping one another, and where we have so many more tasks waiting for us in the decades yet to come.

 

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